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PrzeglÄ…d stron zagranicznych :
Genetyka kliniczna :
Etyka w dziedzinach medycyny :
Bioetyka / Etyka medyczna :
Etyka stosowana i zawodowa :
Etyka :
powrót
Instytucje i organizacje
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- Swedish Society of Medical Genetics – „The Swedish Society of Medical Genetics (SFMG) is a section within The Swedish Society of Medicine and The Swedish Medical Association. Members of SFMG include medical geneticists, clinical laboratory geneticists, researchers, genetic counsellors and other professionals with interests in the fields of medical and clinical genetics. SFMG is also a member of The International Federation of Human Genetic Societies (IFHGS), and we are associated with The European Society of Human Genetics (ESHG).
- Irish Society of Human Genetics – „The Irish Society of Human Genetics promotes research and education in human genetics. It provides a forum for those professionally involved in human genetics and molecular medicine whether in research, education, clinical service or other professional activity”.
- The German Society of Human Genetics – „The German Society of Human Genetics (GfH), founded in 1987, is the primary professional membership organization for human geneticists in Germany. More than 1000 members belong to our Society, as there are researchers, academics, clinicians, laboratory practice professionals, genetic counselors and others involved in or with special interest in human genetics”.
- Dutch Society for Human Genetics – „The NVHG encompasses two professional associations: the Dutch Association of Clinical Geneticists (Vereniging Klinische Genetica Nederland, VKGN), which unites medical specialists in clinical genetics, and the Association of Clinical Genetic Diagnostic Laboratories (Vereniging Klinisch Genetische Laboratoriumdiagnostiek, VKGL), which unites recognised clinical genetics laboratory specialists”.
- British Society for Genetic Medicine – „Founded in 1996, the British Society for Human Genetics now known as the British Society for Genetic Medicine, provides a forum for professionalsinvolved in Genetics as a clinical service and research. Its membership is in excess of 2000 and includes a wide spectrum of clinical, laboratory and research disciplines”.
- Belgian Society for Human Genetics – „The BeSHG was launched in March 2000. The aim of the Society is to allow all scientists involved in the field of human genetics, working in all Belgian universities, and all independent research institutes or genetic centers in Belgium to have an official representative Society in Belgium. The BeSHG is aimed at promoting Human Genetics in its wider sense, a.o. by supporting genetic research, improving exchanges between Belgium and foreign countries, organising scientific meetings, and enhancing collaboration between Belgian labs. The BeSHG will represent the community of Belgian geneticists towards the other national and international Societies of Genetics, and is intended to become a discussion forum on scientific, professional, social and ethical issues linked to the practice of human genetics”.
- Swiss Society of Medical Genetics
- European Molecular Genetics Quality Network – „The European Molecular Genetics Quality Network (EMQN) is a provider of External Quality Assessment (EQA) services which are essential for any laboratory seeking to maintain and provide a quality service. The organization was established in 1998 after a successful pilot trial of a Huntington disease EQA scheme the previous year. From January 1999 to March 2002, the network was supported by a grant from the European Commission under the Standards Measurement and Testing Programme (contract number SMT4-CT98-7515). Since April 2002, EMQN activities have been supported by subscriptions from EQA scheme participants and currently EMQN offers molecular genetics, molecular pathology, and technique specific EQA schemes for molecular testing”.
- EuroGentest – „EuroGentest is a project funded by the European Commission to harmonize the process of genetic testing, from sampling to counseling, across Europe. The ultimate goal is to ensure that all aspects of genetic testing are of high quality thereby providing accurate and reliable results for the benefit of the patients”.
- Human Genome Organisation (HUGO) – „Human Genome Organisation (HUGO) is the international organisation of scientists involved in human genetics. HUGO was conceived in 1988, at the first meeting on genome mapping and sequencing at Cold Spring Harbor. From a 42 scientists of 17 countries membership association, HUGO has increased its membership base to over 1,800 members, both established and aspiring of 87 countries after two decades. HUGO has, over the years, played an essential role behind the scenes of the human genome project. With its mission to promote international collaborative effort to study the human genome and the myriad issues raised by knowledge of the genome, HUGO has had noteworthy successes in some of the less glamorous, but nonetheless vital, aspects of the human genome project”.
- Genetic Alliance UK – „We seek to raise awareness of genetic conditions and improve the quality of services and information available to patients and families”.
- American College of Medical Genetics and Genomics – „The American College of Medical Genetics and Genomics (ACMG) is an organization composed of biochemical, clinical, cytogenetic, medical and molecular geneticists, genetic counselors and other health care professionals committed to the practice of medical genetics”.
- Genetic Alliance – „Genetic Alliance engages individuals, families and communities to transform health. This requires that we as an organization understand what it means to transform systems, dissolve boundaries, create and sustain open space, and promote the process of openness. We understand that to transform systems, we must start with our own, beginning with our very person. Such work calls us, both personally and professionally, to explore the deepest truths about ourselves and the systems we impact”.
- AJHG – „AJHG provides a record of research and review relating to heredity in humans and to the application of genetic principles in medicine and public policy, as well as in related areas of molecular and cell biology. Topics explored by AJHG include behavioral genetics, biochemical genetics, clinical genetics, cytogenetics, dysmorphology, gene therapy, genetic counseling, genetic epidemiology, genomics, immunogenetics, molecular genetics, neurogenetics, and population genetics”.
- EGAN – „EGAN – Patients Network for Medical Research and Health – is a dynamic collaboration of patient organisations that work together because they recognize the value of their involvement in genetics, genomics and medical biotechnology for the prevention and treatment of genetic, multifactorial and congenital disorders. In addition, EGAN pays particular attention to the ethical, legal, psycho-social and cultural implications and the impact on society at large injecting a patient focussed perspective in to political and societal debate on these issues”.
- European Society of Human Genetics – „European Society of Human Genetic is a non-profit organization. Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims, particularly those working in Europe. The Society will encourage and seek to integrate research and its translation into clinical benefits and professional and public education in all areas of human genetics”.
- Council for Responsible Genetics (CRG) – „The Council for Responsible Genetics (CRG) was founded in 1983 by a coalition of scientists, public and occupational health activists, and reproductive rights advocates. From its inception, CRG published articles in its magazine, GeneWatch, that examined the societal impacts of new discoveries in applied genetics. The field of public interest biotechnology had not yet taken root when CRG was formed, a tribute to the prescience of its founders”.
- Genetic Counsellor Registration Board – „The purpose of the GCRB is to establish, maintain and improve standards of practice in genetic counselling to assure public safety in the United Kingdom and Republic of Ireland”.
- International Society of Nurses in Genetics – „The International Society of Nurses in Genetics, ISONG, is a global nursing specialty organization dedicated to genomic health care, education, research, and scholarship. The vision of ISONG is to care for people's genetic and genomic health throughout the lifespan and across the continuum of health and disease”.
- American Society of Human Genetics (ASHG) – „The American Society of Human Genetics (ASHG), founded in 1948, is the primary professional membership organization for human genetics specialists worldwide. The Society’s nearly 8,000 members include researchers, academicians, clinicians, laboratory practice professionals, genetic counselors, nurses and others who have a special interest in the field of human genetics. Our members work in a wide range of settings, including universities, hospitals, institutes, and medical and research laboratories”.
- Canadian Association of Genetic Counsellors – „The Canadian Association of Genetic Counsellors was formed in 1987 with the goal of promoting high standards of practice, facilitating and supporting professional growth and increasing public awareness of the genetic counselling profession in Canada. The CAGC administers the Canadian Certification examination for Genetic Counsellors and provides continuing education opportunities for its members”.
- National Society of Genetic Counselors (USA) – „The National Society of Genetic Counselors (NSGC) promotes the professional interests of genetic counselors and provides a network for professional communications. Local and national continuing education opportunities and the discussion of all issues relevant to human genetics and the genetic counseling profession are an integral part of belonging to the NSGC”.
- Association of Genetic Nurses and Cousellors (UK) – „The aims of the association include:
- to provide support for professionals working in the field
- to provide support for professionals working in the field
- to provide forums for education and scientific meetings
- to represent the views of the profession
- to prescribe good standards of clinical practice
- to liaise and collaborate with other clinical and scientific colleagues in the field
- to provide channels of communication within the profession”
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